Episode 408: ILADS Journey - an interview with Sarah Quillen

Introduction In this compelling episode of the Tick Boot Camp Podcast, hosts Matt Sabatello and Rich Johannesen are thrilled to welcome Sarah Quillen, the dynamic Executive Director of the International Lyme and Associated Diseases Society (ILADS), for an insightful conversation on battling Lyme disease. Adding to the excitement, special guest co-host Ali Moresco joins the dialogue, bridging her passionate advocacy work with ILADS' mission. Guest Bio Sarah Quillen: With a robust background in nonprofit leadership, particularly in health and human services, Sarah brings over 25 years of experience to her role at ILADS. Her career is marked by significant contributions to organizations like the National Hospice and Palliative Care Organization and Ronald McDonald House Charities® of Greater Washington, DC. A native of the Hudson Valley, NY, Sarah's personal and familial experiences with Lyme disease have deeply influenced her dedication to improving care and support for those affected by tick-borne illnesses. Ali Moresco: A fervent advocate for Lyme disease awareness and support, Ali has been a vocal presence in the community, continuously working to amplify the conversation around Lyme and associated diseases. Her collaboration with Tick Boot Camp and ILADS underscores her commitment to driving change and providing resources for those in need. Episode Highlights Introduction to ILADS: Sarah provides an overview of ILADS' mission, emphasizing its dedication to the diagnosis, treatment, and education of Lyme and other complex inflammatory diseases, celebrating 25 years of unwavering commitment to science, research, and education. Personal Journey: Sarah shares her personal connection to Lyme disease, reflecting on her upbringing in a region endemic to ticks and her father's challenging journey with Lyme disease and Babesia, including his participation in the Lymerix vaccine trials. Professional Pathway: Highlighting her trajectory from the fields of hospice and palliative care to her leadership role at ILADS, Sarah discusses the alignment of her professional expertise with her passion for advancing patient care in the realm of tick-borne diseases. Advocacy and Education: The conversation delves into the critical role of ILADS in educating healthcare professionals and the public about Lyme disease, with an emphasis on fostering a multidisciplinary approach to care and the importance of community engagement and support. The Power of Collaboration: Ali Moresco discusses the synergy between her advocacy work, ILADS, and Tick Boot Camp, highlighting the collective effort to raise awareness and support individuals affected by Lyme disease. Call to Action: The hosts and guests discuss the need for continued advocacy, education, and research to improve the lives of those dealing with Lyme disease, urging listeners to get involved and support ILADS' mission. Closing Thoughts Sarah and Ali leave listeners with empowering messages of hope and action, encouraging those affected by Lyme disease and their loved ones to seek comprehensive care, become educated advocates, and contribute to the growing community fighting for better awareness and treatment of tick-borne diseases. Resources International Lyme and Associated Diseases Society (ILADS) International Lyme and Associated Diseases Educational Foundation (ILADEF) Ali Moresco Podcast Interview Tick Boot Camp Podcast Episodes This episode was brought to you by Tick Boot Camp, dedicated to liberating individuals from the suffering caused by Lyme disease and other tick-borne illnesses through validation, community building, and education.