Our life with Angelman Syndrome - Danielle Cullinan

In this very special episode Sinead is joined by a mother of 2 Danielle Cullinan to talk about Angelman Syndrome - a very rare genetic disorder that her eldest daughter Clara was born with. In this episode she takes us on an extraordinary journey to a diagnosis, connecting with other families who have a child with Angelman Syndrome, how she had her husband both found different coping strategies and their decision to have another baby. We also talk about the realities of a severely disablied child in a society that isn’t build to support them. From being told that Clara could no longer attend creche to the chance that there will not be a school place for her either - this episode shines a light on how a young family are trying to work, parent, love and seem to have to fight for what Clara needs at every turn.everymum the podcast is supported by WaterWipes, the world’s purest baby wipes, made with only two ingredients, 99.9% purified water and a drop of fruit extract. WaterWipes is one of the most essential products for every mum from that first nappy change to those messy weaning months. Winners of seven National Parenting Product Awards 2021 including Best Baby Wipes, WaterWipes 100% biodegradable**, plastic free and compostable wipes and are proven to be purer than cotton wool and water making them ideal to protect and gently cleanse sensitive, newborn and even premature skin. As the number one wipe in Ireland* together we are committed to providing more support for parents with trusted products and this podcast.*No 1 Wipe in Ireland = *Based on value sales for the 52 weeks ending 10th October 2021. Source: A.C. Nielsen ROI Scantrack sales*Biodegradable - **Within 4 weeks in an industrial setting/plant in accordance with EN13432. Wipe material.  Hosted on Acast. See acast.com/privacy for more information.