Meagan Eller talks about autoimmune disorders, foggy memory, and the web
A11y Rules Soundbites - A podcast by Nicolas Steenhout
Categorie:
Meagan says: "Sometimes a disability or an impairment is temporary. It's situational. Most of the time I don't have issues. But when I do, I really have them. So try to keep things as simple and easy to use as possible." Thanks to Fable for sponsoring the transcript for this episode. Transcript Nic Hi, I'm Nic Steenhout. And you're listening to the accessibility rules soundbite, a series of short podcasts, where disabled people explain their impairment and what barrier they encounter on the web. Quick reminder that transcripts are available for all episodes at the time of publication on the website. At A one one, why are you l es.com? This is the time to thank our sponsor fable. Fable is an accessibility platform a leader in the field powered by disabled people, I think that's important because nothing about us without us. Anyway, fable moves organizations from worrying about compliance to building incredible and accessible user experiences. You can learn more about how Fable can work for your team at https://makeitfable.com/nic. Today I'm talking with Megan eller. Hey, Megan, how are you? Meagan Hi, I'm alright. Nic We haven't really spoken we I think we hang around in the web accessibility slack a little bit. And we may have exchanged a few words, but I don't know you. So this is going to be fun to get to know you a little bit. My first question is typically what's your disability or your impairment, but when we were talking about having you on as a guest, you were a little bit concerned that you don't have a disability, you said, but you do have a condition that is an impairment. Tell us a little bit about that. Meagan So I have an autoimmune hypothyroidism Hashimotos disease. And basically, I have an underactive thyroid, because my immune system attacks my thyroid and your thyroid and the hormones it produces are involved with a lot of body systems. So it can affect a lot of things when the levels aren't, you know, when you're not producing enough hormone from the thyroid. It's very easily treatable with medication. But because it's auto immune, it's not stable. So sometimes medication level isn't... Right. I ran into actually last winter, with our overwhelmed health system, having the delay in getting a correct dosage. And so that was when I had messaged you about being on the podcast, that was the kind of what I was thinking about. Where I really was for a couple of weeks, feeling very I guess. I don't find it disabling but I was definitely feeling very impaired by trying to do things. Nic That's an interesting thing to consider is that you can have a condition that is 90% of the time fine and controlled with medication or, you know, any other kind of fixes. I say fixes in quote marks, but when things get off the rails and even though you're not necessarily longterm, disabled, you still encounter barriers, right? Meagan Absolutely. Yep. It was, I actually went and looked back at apt notes from at that time, because I had mentioned to you that I have a really great boss, that when I told him what was going on, he was very willing to work with me, but you know, explaining that, you know, I was having these difficulties and, and a big one I had mentioned to you was just the fatigue and kind of that brain fog, having trouble concentrating. It's like, I know, I can feel my brain being slow. And I know I'm not you know, doing as much work and maybe not as succinctly as I usually do, you know, in writing, things like that. Nic So how does that translate as a barrier on using the web what what kind of thing really jumped out at you and were problematic? Meagan So the, with the just being tired and having trouble concentrating. That was making it difficult. I was rereading things I found myself every so often I'll use reader mode for articles, especially when there's a lot of motion and videos and stuff, I find that distracting normally, but I really needed that to be able to concentrate